SIU Carbondale project offers help to parents of children with t - KFVS12 News & Weather Cape Girardeau, Carbondale, Poplar Bluff

SIU Carbondale project offers help to parents of children with trisomy

CARBONDALE, IL (KFVS) -

Parents are often told that their child has a condition that is "incompatible with life."

That condition, Edwards syndrome, or trisomy 18, is characterized by the presence of an extra chromosome. It can be present in some cells (mosaicism) as well as attached to some cells, but not others (partial). 

Carbondale faculty member Deborah Burns, and her student staff with the Tracking Rare Incidence Syndromes (TRIS) project, are aiming to help parents of children with trisomy learn about who their children are, and what their future holds. 

The TRIS project also wants to increase the general knowledge of trisomy conditions by making information available to families and interested educational, medical and therapeutic professionals. 

Bruns is a professor in the Special Education program in the Department of Counseling, Quantitative Methods and Special Education and has more than 20 years of experience with children with multiple disabilities. 

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