9-year-old TJ's story of inspiration - KFVS12 News & Weather Cape Girardeau, Carbondale, Poplar Bluff

9-year-old TJ's story of inspiration

At 9 years old TJ Williams been through more than most of us can even imagine. At 9 years old TJ Williams been through more than most of us can even imagine.
"You can see it in his eyes, he doesn't have to say I love you...you can just see it," said Trevor Williams, TJ's dad. "You can see it in his eyes, he doesn't have to say I love you...you can just see it," said Trevor Williams, TJ's dad.
TJ turns 10 next month. There is a special benefit for him Saturday May 5, 2012 at the Elks Lodge in Jackson. TJ turns 10 next month. There is a special benefit for him Saturday May 5, 2012 at the Elks Lodge in Jackson.
On March 19, 2012, TJ underwent a double hip reconstruction due to severe hip dysplasia. On March 19, 2012, TJ underwent a double hip reconstruction due to severe hip dysplasia.
At four months old, he underwent brain surgery. At four months old, he underwent brain surgery.
CAPE GIRARDEAU, MO (KFVS) -

At 9 years old he's been through more than most of us can even imagine.

"He's such an inspiration, so strong and such a fighter," said Callie Williams.

TJ Williams was born with a rare brain defect.

"It's called hemimegalencephaly," said Callie Williams, TJ's mom. "It causes severe epilepsy. When he was born he had a seizure every seven minutes."

At four months old, he underwent brain surgery.

"They took out the entire right portion of his brain," said Callie Williams. 

The seizures stopped, thanks to that surgery and medications.

In 2010, TJ suffered another big setback. His kidneys shutdown out of nowhere. His mother says he got severely sick and lost 15-20 pounds.

Doctors diagnosed him with Acute Intermittent Porphyria. It's a genetic disease that was triggered by his seizure medications.

"He is the only child within 35 years in the U.S. that has been diagnosed with the disease," said Callie Williams. 

"We try to give him the most normal life that we can," said Trevor Williams, TJ's dad. 

It's a constant challenge as more and more trials come their way. 

On March 19, 2012, TJ underwent a double hip reconstruction due to severe hip dysplasia.

He's still pretty sore from that surgery. He goes to physical therapy three times a week.

TJ doesn't walk or talk.

"You can see it in his eyes, he doesn't have to say I love you...you can just see it," said Trevor Williams. 

His parents pray everyday for a miracle.

"I have dreams all the time that he's going to walk," said Trevor Williams. 

They used to ask the question "why", but no longer.

"We both feel we were chosen to take care of one of God's special kids and that's how we feel that God trusted us to take care of him," said Trevor Williams. 

They make the best of every moment.

"Now we're at the point where we are doing what we can to make him happy and every moment enjoyable while he's here," said Callie Williams. 

He's a child who has brought so much joy, and continues to love life despite his limitations.

"It's going to come to a point where the seizures become uncontrollable as he gets older," said Callie Williams. 

For now they rely on smiles from TJ, and their faith.

"We put it in God's hands," said Callie Williams. 

TJ turns 10 next month. There is a special benefit for him Saturday May 5, 2012 at the Elks Lodge in Jackson.

It will be held in the lower level from 5 to 11 p.m.

Tickets are $20, and includes a dinner/dance. There will also be a silent auction, full cash bar, and much more.

Tickets can be purchased at the door.

Copyright 2012 KFVS. All Rights Reserved.

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