Jackson boy 1 of 12 chosen for clinical trial - KFVS12 News & Weather Cape Girardeau, Carbondale, Poplar Bluff

Jackson boy 1 of 12 chosen for clinical trial

OAK RIDGE, MO (KFVS) -

He's one of 12 boys in the country to be chosen for a clinical trial that could save his life. Eleven year old Justin Trovillion of Jackson has Duchenne, a form of Muscular Dystrophy.

"A lot of people if you are around him everyday you would not know it. He has big calf muscles, that's one sign," said his mother, Carrie Trovillion. "But he can run and he jumps in his own way."

Justin is lucky. He was diagnosed at age three.

"His crawling was off," said Carrie. "Doctors diagnosed him immediately."

Carrie explains a grant through the Muscular Dystrophy Association makes it possible for them to participate in the expensive trial.

"We go to Columbus Ohio for three days a week. MDA pays for everything for planes to food to hotels. Because of the people that donate to MDA locally, Justin's life will be saved," said Carrie with tears in her eyes.

At home, Justin participates in horse therapy at Mississippi Valley Therapeutic Horsemanship in Oak Ridge.

"These guys on the horses can run as fast as they want," said Carrie. "The volunteers are amazing."

Grayson Erlbacher is Justin's instructor and has been since he started the program last year.

"Things that take other rides years, Justin catches on immediately," said Grayson. "He's a great rider."

Justin also volunteers at the barn and helps other riders. Justin normally rides Siri, a horse Carrie calls his soul mate.

"They are best friends," said Carrie.

"By the end of the lesson he's riding Siri on his own," said Grayson.

Meanwhile, Justin also participates in MDA camp and many other fund raisers to help others with MD.

"People need to realize when they donate, the money stays local," said Carrie. "We are so thankful for everyone who's helping Justin live a better life."

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